"More than 60,000 people – around five percent of the Estonian
population – have voluntarily participated in genome sequencing. The
data is then anonymized and used in conducting comprehensive healthcare
analyses. “It’s voluntary, and you also could choose commercial
providers to do this,” remarks Deniss Ojastu, Head of Business Area at
the globally successful software developer AS Helmes. He rhetorically
adds: “But whom would you prefer to trust – a commercial company that
owns your data or your national health administration where you take
ownership?”
Trust in institutions, schools, the police, or the government in
general is a precondition for creating democratic digital societies that
work. I’ve experienced this sort of trust before in Finland. In
Germany, we’re quick to dismiss smaller countries as less complex and
under less public scrutiny than we are. Deniss Ojastu won’t let that
slide. “We’re regularly having the same kinds of debates as Germany.
Since we take them seriously, Estonia has manifold regulations and
powerful barriers in place that prevent unauthorized access or data
abuse. If, despite this, a physician managed to transfer your data
illegally, he would be immediately stripped of his access.”"
Source: https://www.gernbotschaft.com/baltic-turbo/
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